Deaf Women Supporting Deaf Women

This article originally appeared in Get a Z Life Magazine. 

deafwomenWhen you put a group of women together to work, what do you get? Ask anyone this question, and you’re likely to get stereotypical responses like, “Oooh, catfight!” or “A lot of drama and backstabbing.” Is this really accurate, especially in the Deaf community? Many don’t think so.

Stereotypes

Why do such negative stereotypes persist? “I think it’s because of the already-oppressive world that women live in,” says Deaf Women United (DWU) Chair Melissa Yingst Huber of Phoenix. “For a long time, women have faced oppression, and just recently more and more women are emerging as leaders. Women have had to work harder, and in a sense, ‘fight’ to earn respect as leaders, so that is already a negative connotation in us as women, that we have to fight hard to earn the respect we deserve as leaders. It may be hard for some women to celebrate other women leaders because they are already fighting for a place for themselves in society. So it may be their first instinct to view other women leaders as competition rather than recognizing them as equally accomplished female counterparts in the world.”

 Socorro Moore of Seattle, who serves on the Council de Manos board along with the DWU board, agrees. “To collaborate and work together can be challenging because we’re dealing with people different from ourselves, and our self-interests may conflict. Women might also have fears coming from a place of unawareness, [fears of] being judged and miscommunication, and being patronized simply because they are women.”

Another factor of negative stereotypes is the expectation of women to do it all. Huber says, “Many women who have children may be expected or feel that they need to put in more time with their children, and that takes away the free time that they may have to continue with leadership commitments, activities, and so on, especially if they are working women.”
“There’s so much domestic violence going on, a lot of women have self-esteem issues where they may need support from other women without judgment,” adds Sharon White, an active National Black Deaf Advocate participant from Frankfort, Ky. “We also have to remember different backgrounds, cultures and religions. Today, things are a lot different for women in employment, especially for single moms—the list goes on. It’s sometimes frustrating and hard to get everyone together. There are many bright women out there but they may be not available to be part of the advocacy network because they have small children, and they don’t have the time to give to support groups.”

Huber, however, sees an upside to this high expectation. “The idea that many women take on many different roles can enable them to be great multitaskers, juggle different commitments, and develop skills to make significant contributions to the community.”

Lack of Support and Role Models

Another challenge is the lack of support and role models, Huber says. “In the Deaf world, where the crab theory is already imminent, that’s a double negative for Deaf women. Deaf people are already trying to make their place in a hearing-dominated world, so it makes it doubly harder for Deaf women leaders to emerge and celebrate each other.”

“I think healthy models are lacking because many of us did not have other women to look up to while growing up,” Marilyn Jean Smith of Seattle says. Smith founded the acclaimed Abused Deaf Women Advocacy Services (ADWAS) organization and has served on numerous boards, including DWU and the National Association of the Deaf. She continues, “I personally had to unlearn a lot of things, move away from the hierarchal model and go with a consensus model, which I think respects everyone’s thoughts (or tries to). Our models have been traditional male ones, which is, for the most part, about power and control.”

Huber echoes this perspective. “It has often been said that women are too emotional and sensitive. However, I feel that very element makes women great leaders. Being emotionally in tune enables women to connect with others, be more in tune with others’ emotions, understand each other more, gauge interest and reactions from other people.”

She points out that the availability of Deaf women as role models in her upbringing helped her become the confident, happy woman she is today. “I’ve always loved being a Deaf woman. My pride of being a strong Deaf woman probably comes from the fact that I had a Deaf mother who was a strong woman, never afraid to share her thoughts, and that was instilled in me at a very young age. I also had wonderful Deaf female role models growing up. That sense of pride only got stronger as I grew older.”

The Deaf community is close-knit in nature, so when the crab theory is in full force, that can become difficult to address, Smith says. “I think we go quiet most of the time when we see someone sabotaging the efforts of another or don’t confront women who tell stories about others that may not be true. Our community is certainly small and in an effort to get along with everyone, however superficial it is, this can mean we sometimes keep quiet to not rock the boat.”

Sofia Seitchik, of Global Deaf Women, says, “This pulling-down of each other takes place because of people’s mindsets and their upbringings. Many don’t realize what their beliefs are as Deaf people, which are often developed from oppression.” She continues, “They need to reexamine themselves and ask themselves questions like, ‘Is there anything I can do to shift my mindset and beliefs as a Deaf woman, to believe that we are intelligent and as capable as any other person?’ This will help them open their hearts and this can be a very powerful self-mirror. Only then can they really support other women, such as Deaf business owners.”

Deaf Business Owners

Jasmine Garcia-Freeland, who owns All That Jazz and lives in Bozeman, Mont., sees this pulling-down often. “As a second-year business owner who is a Deaf woman, I think a lot of the negativity is based on mentality.” She cites a pattern among many Deaf women who refuse to support certain Deaf businesswomen simply because of personal conflicts, rather than looking at the bigger picture of the Deaf ecosystem. “To me, it doesn’t matter if I like that person or not. It’s important that we always support each other, encourage each other, and strive for a stronger Deaf business community so that our reach can extend to the hearing community, too.”

Seitchik is a successful business and life coach working with Deaf women entrepreneurs. “In the past few years we’ve seen some of the fastest-growing numbers of Deaf-owned and woman-owned businesses, but not many of them survive. This creates unique stressors, because so many eyes are on the owners, waiting to see if they fail. There exists a norm among the Deaf community that they will wait to see if a business makes it or not before they support.” As a result, Seitchik says, deaf businesswomen have to invest time and energy in educating the community on their businesses, rather than focusing on the businesses themselves.

Seitchik also receives the same questions repeatedly in her coaching: “I get asked over and over again, ‘Will I be successful in my business? Will Deaf people support me? Do you think I can do it?’ I see so much fear in their eyes, and this pains me because this is the mindset that has been in place for many years. Most deaf people prefer to invest in hearing businesses because they mistakenly believe that hearing people know more. This is even more true for deaf women business owners, and it’s tiring and demoralizing.”

Strategies for Support

Moore believes the solution to removal of negativity can be found in ourselves. “We each have to get out of our way to help others reach their goals. This goes beyond concern for yourself and your own advancement. Don’t panic when others are happy and improving—envy, jealousy, and bitterness are a waste of time, and it’s not a great place to feel insecurity.”

Smith agrees wholeheartedly. “I have my limits with negative people. There is only so much I can do and then I need to walk away or minimize our encounters. One thing I know for sure: always respond in a positive way to negativity. It is draining work but it has to happen or you risk getting sucked in.” She suggests writing about your experiences, and having dialogue by being vulnerable and being open. She often posts her thoughts on social media, saying, “I’m amazed at how many people validate some things I post on Facebook with responses like, ‘Whew, I’m not alone. I thought I was the only one.’ We need to praise other women not just to their faces but also to others. Cherish their gifts, as you want them to cherish yours. Be a role model.”

White says, “Trying to work together and trying to find a common ground is always important. It’s best to take a negative situation and try to see the positive of it and work with that.” She adds, “We need to start offering our experiences in exchange for helping out with peer groups for women to help become more independent as well as boosting their self-esteem.” Sharing experiences to bond with others is another way women can support each other, she believes. “Provide support for them. Let them know there are resources out there. Be honest and open-minded, and provide clear communication so that things can be understood rather than misunderstood. Basically, treat deaf women the way you wish to be treated as a human being, not because we are deaf.”

Celebrating each person’s accomplishments is another step, Huber says. “Each woman has a unique story and has so much to contribute, and it’s so important to celebrate and recognize what each woman can contribute, whether big or small. When women are recognized and celebrated, this inspires other women, creating a ripple effect.”

Although there are many who continue to believe in traditional roles and expectations for women, Huber has hope. “The optimist in me has already seen so much positive change in today’s society where people are becoming more accepting and aware of everyone’s differences, respecting everyone’s backgrounds. There are only more good things to come, which will include more acceptance, celebration, and respect for women. Not only the concept of womanhood, but also the full picture of each woman, all the different layers in each woman, and the different intersectionalities of each.”

Garcia-Freeland adds, “It’s so important to socialize with women from all walks of life, because this is the reality of the world. It’s diverse, and I want to work well with others. I can accomplish this because I value each person’s experiences and stories, regardless of whether we have mutual friends or not.”

“I am aware that we Deaf women may have to work harder and prove ourselves, but that’s okay with me, because I know that we Deaf women are fully capable of accomplishing many wonderful things. I would not change a thing, especially with the plethora of Deaf female organizations out there and all the opportunities for Deaf women out there,” Huber says. “There’s always magic when you put together a group of women, because they’re able to influence each other and inspire each other in positive ways.”

Full, unfiltered access to ASL and the world

whyisign(Reposted from my Facebook page, February 13, 2016)

My (deaf) daughters and I went out for dinner, and my four-year-old asked me why it rained. My oldest, eight years old, started explaining, but the younger interrupted and said, “My friend says it’s because God cries.” I said, “That could be true, too.” We all laughed and came up with different reasons (God sneezing, birds spitting, etc.) — all very silly and cute.

That led to a conversation about why it was cold outside, and how countries below the equator had opposite seasons. I described how the earth rotates daily and around the sun (thank goodness for ASL, because it helped them understand immediately) and how this related to why we count 24 hours and 365 days. I also showed them a few videos off the Internet showing the solar system and all that stuff. 

At that moment, it hit me: how lucky are we?! My girls and I have full access to communication at home and at school/work. I had that growing up, too. I can’t imagine how it would be if we didn’t have this full, unfiltered access to ASL, and subsequently, the world. We *never* have frustrations in communication with each other — not even for the most complex of topics.

That’s why it’s so important for parents like Cam (see previous post) to share their stories. I’m so grateful to Stacey Abrams for creating the Why I Sign page, and even more grateful to all the parents and family members who have responded overwhelmingly to that page. Teach deaf children to speak if it’s really important to you, but never, ever, ever at the expense of sign language or the child. I speak from experience, and so do my children. ‪#‎whyisign‬

sComm: An Update

Read my original article and open letter (available in ASL and English) before reading the below.

Warning: This article includes graphic language.

In March, I wrote an article objecting to sComm’s practice of promoting the UbiDuo as a replacement for interpreters. I then wrote an open letter urging sComm to retract its statements and apologize to interpreters and the community. Several messages I sent to sComm went unanswered. Before continuing, it may help to know a bit about sComm.

About sComm
sComm is located in Raytown, Mo., just outside of Kansas City. sComm promotes itself as being deaf-owned, but in reality, it’s partially owned by Jason Curry, who is deaf. His parents, David and Emma Curry, both hearing, are the other owners. David, credited with devising the UbiDuo concept, is a well-known real estate mogul in Sedalia, Mo.; he does not sign. Emma was an educational interpreter (using Signed Exact English) at one time, but is now the vice president at sComm and is typically involved with day-to-day matters.

The start of sComm (the name stands for simultaneous communication) was discussed in an article in The ExaminersComm “applied for a National Institutes of Health grant. It took five years for the funding to come through. In 2005 the company received a $1.5 million grant.” Curry, now 46, was then working for the federal General Services Administration, and resigned to take the company forward in 2008.

Response to My Writings
After my article and open letter were released, the response was overwhelming. Message after message shared people’s heart-wrenching stories from of being forced or pushed to use the UbiDuo instead of having interpreters brought onsite, especially in hospital and government settings. Deaf Hearing Network also aired a segment featuring a woman who shared her negative experiences with the UbiDuo.

[Read more…]

Speech given at a high school in 2015

The following is a speech I gave at a public high school’s world languages ceremony in 2015. Read the article I wrote about this experience.

Language, as we know firsthand, is at the very heart of every civilization, and has been ever since the beginning of humankind. Whether it be gestures or full-blown language, language has endured changes, evolution, abuse and even death, or linguicide — and nowhere is that more evident than in signed languages.

Allow me to back up a bit and give you a bit of background. I am second-generation Deaf, which means my parents are also deaf. My husband is third-generation, so that means our four deaf children are fourth generations — and we have over 50 deaf relatives on both sides of the family in terms of cousins, uncles and aunts, grandparents and lots of other relatives I probably don’t want to meet. That translates to a long history of using sign language in our family, dating back to the early 1900s. In essence, we’ve had sign language for over a hundred years. As Deaf people, we recognize the immense value of language, and being able to connect with each other through words, spoken or signed.

Today, American Sign Language, ASL, like many other languages, is recognized on so many levels. It’s one of the fastest-growing languages in the U.S., and is believed to be the third most used language in the U.S. Sounds good, right?

Well, let me give you a bit of history. Although sign language has been around since primitive times, and the earliest recorded drawing of the fingerspelled alphabet dates back to the 1500s, it wasn’t until the 1960s that Dr. William Stokoe, a hearing man who wasn’t very fluent in sign language, did research that proved ASL was a bona fide language, separate from English.

I remember growing up telling people, and even writing in my research papers for school, that ASL was broken English, that it was abbreviated English. I can’t believe I actually said that, because this was during the 1980s and early 1990s. ASL research already existed. Why didn’t anyone tell me otherwise? Why was I never taught that ASL had its own rich vocabulary, syntax and other properties?

I’ll tell you why. It’s because for centuries, sign language has been looked upon as a language for animals, as primitive, as unsavory, and any other host of adjectives. This primarily has to do with the notion that spoken language is superior. This is only natural; anything different from us is considered strange, funny, fascinating, or even beautiful. We all experience xenophobia to different degrees. That’s why learning new languages is so important, so that we can learn about other cultures, other peoples, and each other.

The problem is that signed language is often not considered another language. Rather, people mistakenly believe it’s a basic form of gesturing, and a direct representation of English on the hands. And that couldn’t be further from the truth.

As students of language yourself, you know how challenging grammar in other languages can be. This is equally true for sign language, whether it’s American Sign Language or French Sign Language or any other signed language. As an aside, sign language isn’t universal, if you were wondering.

So, back to why nobody told me ASL was a stand-alone, distinct language from English. . . there is a long history behind this, and it involves Alexander Graham Bell. Yeah, that one. The same guy who invented our telephone, or rather, he was the first to claim the patent. It’s now known that he wasn’t actually the first inventor, but he got the patent first.

Bell was the son of a deaf mother, and is said to have been very fluent in sign language. He later married a deaf woman, who did not sign. Nobody really knows why, but Bell became very adamant that sign language was not the way go. He became a steadfast proponent of banishing sign language from all education. He also believed that deaf people should not marry, and actually was a huge supporter of eugenics, the social movement claiming to improve the genetic features of human populations through selective breeding and sterilization in order to create a superior society. He even served as president of the National Eugenics Society.

Many people find that astonishing, and I do, too. How could someone who signed fluently, had deaf relatives and was such a brilliant man have such warped perspectives? Even if times were different back then, it’s still shocking.

Bell had a pivotal role in something that has had major ripple effects to this day. He was one of 164 delegates to the 1880 International Congress on Education of the Deaf, which was held in Milan, Italy. At this conference, it was voted that sign language would be banned from education in favor of teaching deaf children to speak. Out of the 164 delegates, guess how many were deaf? Only one.

So, as a result of this ban, Deaf teachers and other deaf professionals lost their jobs if they could not speak. Deaf children were raised without access to sign language, often being punished if they even as much moved their fingers, and this lack of access caused great delays in language development, in later-life opportunities and much more. The effects are being felt even today, 135 years later — all because of the notion that spoken language is superior to signed language.

Around the country, and in many other countries, deaf schools — which are not the stereotypical institutions you think of where you “abandon” people with disabilities or mental illnesses; they’re actually beautiful, flourishing places where culture, language and tradition are preserved from generation to generation — are closing down for many reasons, but especially because of the perceived cost. More and more school districts are favoring mainstreaming because they think it saves money, when in reality, it causes a lot more harm for so many children in terms of language access. I’m not saying mainstreaming is bad; it’s not always bad. It worked for me, but I wish I knew back then what I know today.

There is also a massive spoken language — in other words, no signs — movement underway around the nation. More and more doctors are urging parents to shun sign language and to focus on spoken language. Spoken language does work for some, but not for all. What happens is that in 20 years, many of these deaf babies raised without sign language, come to the deaf community with anger, frustration and struggles because they had limited language access. This has happened time after time, and despite the most massive efforts, signed language has persisted.

With my four children — who are ages 7, 6, almost 5 and 3.5 — I saw firsthand just how naturally their language developed. They began babbling in sign language at maybe three months, and then began making words when they were six months old. It didn’t change with each child; each child hit the same language milestones in their first year of life. I have many examples that support how bilingualism is really beneficial.

When my oldest was 17 months old, she told me about a dream she had about a wolf inside a pumpkin. I was astounded, because that was from a children’s book we had read a few days before. For her to be able to describe such an abstract concept — dreams — and be so detailed in what it was about was just mind-blowing. Yet, because she was not yet fluent in English at that age, she would have been incorrectly perceived as language-delayed. Today, she’s seven and reading and writing at two grades above level. My other children are the same; all are above grade level for language in both ASL and English. This is no surprise for those who are familiar with bilingualism with any two languages; bilingualism has consistently shown to help young children acquire languages and get ahead in many areas.

With the proliferation of sign language classes and programs around the country, it’s sadly ironic that more and more deaf people — specifically children — are being denied access to sign language, which is their natural language. All this stems from the mistaken notion that one language is superior to another. Signed languages are not the only victims of this, though. This is also happening with many other languages in the United States, all because of the belief that English should be the only language.

And this, my friends, is exactly why language access is so crucial for any child, deaf or hearing. Unfortunately, because being deaf is still looked upon as a disability instead of a linguistic minority or cultural minority, millions of children around the world are being denied sign language. We must cease the belief that any one language is superior to another, like English being superior to Spanish.

So, what does this have to do with you? Why should you care? The answer is simple. You are given the privilege of choosing to study one language, any language and making yourself bilingual or even multilingual. And you can do this using your natural language. This same privilege needs to be given to deaf children, just like I was given that privilege. There are many ways you can do this as a world language student.

Say you’re learning Italian or French, and you go to Italy or France and run into a deaf child. What would you do? Or maybe you have a deaf child yourself someday. How would you respond? May I suggest that as you study your language of choice, you also learn the sign language of that country? Learn about sign language, learn about the glorious culture of Deaf people not only in America, but in other countries as well, and help promote the fact that signed language is as important as your language of choice. By ensuring that signed language persists despite blatant modern-day efforts to abolish it and misconceptions, you are helping bring language access to every deaf person out there. Linguicide is not acceptable for any language, and one way to combat this is as you continue to study languages, embrace their peoples, histories and cultures, and celebrate all that the language stands for.

Thank you for allowing me to share the importance of preserving any and all languages without oppression or notions of superiority. Congratulations on this wonderful journey you have embarked on into world language learning.

This presentation can not be copied, reproduced, or redistributed without the written consent of the author.

Open letter to Jason Curry, sComm CEO

(To learn more about this open letter, go here.)

March 30, 2015

Mr. Curry:

Thank you for the video you released on Friday, March 27, clarifying sComm’s position on having the UbiDuo replace interpreters specifically in child abuse cases.

My goal is to ensure that accurate information is shared with everyone, deaf or hearing, and that nobody has any communication options forced upon him or her. I would like to invite sComm to share in this goal.

However, many of the comments on the sComm Facebook page have been deleted, including several I posted, such as this one:IMG_6636 2

I would like to understand why they were deleted. A tough part of any business is dealing with customer feedback, positive or negative. Deleting messages can be counterproductive, and implies that sComm does not welcome feedback from the very community it serves.

Additionally, there seems to be quite a history of sComm’s position on “replacing” interpreters with the UbiDuo and the continued implication that deaf and hard of hearing people cannot function independently; this dates back to at least January 2012, as shown in this YouTube video at around the three-minute mark where you are shown typing “deaf and hard of hearing people have to go everywhere with an interpreter” to a reporter.

Screen Shot 2015-03-30 at 10.14.32 AM

I also have numerous other screenshots, submitted by people, showing similar messages made by sComm representatives and/or you.

While I won’t repeat the long list of issues and suggestions mentioned on my Facebook page or website, I would like to invite you to release an official statement stating sComm’s position on interpreters as a valuable communication tool (or even necessity). I would also like to invite you to share sComm’s updated marketing strategy and how the UbiDuo will be illustrated as one of many options, rather than the only option, available to people who are deaf or hard of hearing. Please note I am not including deafblind people here, as many have told me that the UbiDuo is inaccessible to them. I also encourage sComm to add a statement to its website clearly stating that the UbiDuo should never be considered a replacement for those who prefer to work with interpreters.

Furthermore, I would like to know if sComm intends to take down the Communiphobia video and all other videos and posts that demean American Sign Language and interpreters indirectly or directly. Finally, I welcome an apology from sComm, and you personally, to the deaf and interpreting communities for the insurmountable harm and countless misconceptions that sComm has created, and sComm’s commitment to remedying this.

From a deaf business owner to another, I implore you to please remember that whether we like it or not, any message you share with your clients will have an indirect, and direct, effect on each and every member of the deaf community, including my four children and me. People like you and me are shaping their futures, and it’s crucial that we do this correctly and respectfully.

I look forward to positive changes.

Sincerely,

Trudy Suggs

To Lead or Not to Lead? Sharing Power in the Field of Interpreting

This article originally appeared in the spring/summer 2014 issue of the RID VIEWS (Volume 31, Issue 2).

View it as a PDF file: Suggs-Bowen_Article.pdf

By Doug Bowen-Bailey, CI/CT, and Trudy Suggs, CDI

In the field of interpreting, a critical question is how to share power in leadership. While interpreters might often think of this at the organizational level, they also need to see this power-sharing method in daily practice.

As certified interpreters, we have worked together on many projects. We are also both passionate about language, both written and signed. In our partnership, we frequently have had to navigate ways to share power as a hearing person and a deaf person. Our work, however, often focuses on much broader issues than linguistics.

One such example of power-sharing becoming an issue emerged during a video project where we worked with a hearing project manager in creating an ASL version of an English-based curriculum. The project manager did not sign and was relatively new to the deaf community, although he had worked on other deaf community projects in the past. He had tremendously good intentions and was very committed to access. Yet at the beginning of this collaboration, he frequently communicated via telephone with Doug on project details, and Doug would then let Trudy know of the conversations. The conversations were rarely long or substantive, but they put Doug in the role of gatekeeper. As a result, Trudy responded to ideas rather than helping to create them, a significant shift since it was Trudy who had initially advocated for Doug’s involvement in this project.

After a few times, Trudy expressed a bit of concern about this process. Doug agreed, especially since he had also noted this pattern. Together, they determined that using a text-based online meeting platform would allow everyone to have equal access (with the added benefit of having a transcript for notes). Also discussed was who should propose this idea to the project manager; we decided that Doug should do it because, as a hearing person, there was less risk that he would be perceived negatively for challenging a hearing norm. Doug then offered this alternative to the project manager, pointing out the barriers created by the phone calls. The project manager quickly agreed, and the text chat turned out to be very successful in allowing all parties to more fully contribute.

Such instances often are so subtle that they don’t appear as clear delineations of power, but over time, they can become leadership challenges. In exploring such daily opportunities for sharing power, a better understanding of leadership can be achieved. We don’t intend to lift up our choices as the ideal model; however, there are principles in how we responded that may be helpful. The steps in that process consisted of:

  • Understanding the power of gatekeeping
  • Committing to shared decision-making
  • Analyzing the dynamics of power and risk
  • Creating a joint plan of action

Understanding the Power of Gatekeeping

It is important to look at the function and power of gatekeeping. In this example, gatekeeper meant being in a position to allow access to a system or institution. Initially, Trudy was the gatekeeper for Doug by advocating for his involvement in the project. However, in American dominant hearing culture, society is much more comfortable with hearing people in the role of gatekeeper. Whether rooted in audism, or in the ease that many find in communicating through spoken English, or a combination of both, Doug quickly became the gatekeeper.

In an August 2014 interview, Jimmy Beldon identified in the dynamics of opportunities for hearing and deaf interpreters:

…sometimes CDIs will see doors open and invite a hearing interpreter to work — in a team. But then the hearing interpreter walks ahead and goes through the door alone, leaving the CDI behind. When the hearing interpreter enters alone, it means that interpreter starts building a relationship with people and with clients while also building skills. As typically is the case, when people build skills, they naturally become leaders and accept leadership roles.

Such a pattern leads to a power imbalance. Fortunately, we were able to recognize this dynamic in that particular project and managed it in a way that did not leave either of us behind. In fact, for certain projects, it has been critical for Trudy serve as gatekeeper. For example, we have needed to recruit talent who are Deaf and fluent in ASL. Her understanding of and relationships within the Deaf community make her much more effective in this role than Doug can be.

Valuing the Wisdom of the Deaf Experience

A common approach to making decisions about deaf people is to simply exclude them and determine, based on various altruistic and systematic values, what is “best” for them. As discussed in Trudy’s Deaf Disempowerment and Today’s Interpreter presentation for Street Leverage, disempowerment is the taking away of power. She shares examples of how everyday disempowerment happens at minuscule, yet influential, levels. This, in turn, creates a cycle of situational disempowerment and economic disempowerment — thereby continuing the (unintentional and intentional) oppression of deaf people in every facet of their lives.

In the aforementioned project, Doug’s moving into the gatekeeper role certainly could have had economic consequences. If Doug had ignored or minimized Trudy’s concerns, he could have gone on to build relationships that led to further projects for him while leaving Trudy behind, creating economic and situational disempowerment.

In her StreetLeverage presentation, Trudy pointed out some other approaches:

By refusing to control situations, by deferring to the deaf person whenever appropriate, by allowing the consumers to control the situation, and by ensuring that you don’t speak on behalf of the entire deaf community especially if you’re hearing—you can take steps towards ensuring that deaf people retain their power while you do your job. (Suggs, 2012b)

The idea of hearing people deferring to deaf people is not done out of pity or patronization. The justification for it is not that deaf people have experienced oppression, so therefore hearing interpreters should simply back off. Rather, it comes from a valuing of the wisdom that comes from Deaf epistemology, which is defined as “the nature and extent of the knowledge that deaf individuals acquire growing up in a society that relies primarily on audition to navigate life” (Hauser et al., 2010, p. 486).   In other words, the experience of being deaf in a hearing world provides insights that hearing interpreters can’t have access to unless they are open to following deaf people’s lead.

Another deaf-hearing team experience showcases this deference as a key step. Nic Zapko and Patty Gordon are the creators of StoryBlend, an immersion experience that uses theater to build ASL and interpreting skills. Nic, who is deaf, and Patty, who is hearing, have noticed a consistent dynamic in the process as it moves from the first to the second week. Initially, all interactions are in ASL. By the second week, participants begin to work on translating ASL into English. At some point, the atmosphere shifts from being Deaf-centric to hearing-centric. Nic was the first to notice this; in fact, Patty states that she often doesn’t see or sense it until Nic points it out. She has learned to defer to Nic’s identification of the shift so that it can be addressed for the benefit of all involved with StoryBlend.

Analyzing the Dynamics of Power and Risk

In identifying issues related to leadership and power-sharing, the next step is to make an assessment of the dynamics of power and risk. Valuing the wisdom of and deferring to the leadership of deaf people does not mean that hearing interpreters can, or should, simply step back from taking action or responsibility. In some situations, a deaf person may provide the insight and leadership, but it may be too risky to be the point person in carrying out an action. Consequently, a hearing interpreter may serve that purpose as an ally. This does not mean that the deaf person is giving up power to someone with privilege. Rather, taking an honest assessment of the dynamics of the situation helps figure out the best way to address how to achieve an objective with the least risk.

In the initial example with the project manager, we determined that Doug had less to risk in challenging the hearing norm of phone conversations. One of the ironies of hearing privilege is that hearing people can often bring forward the exact same critique of a situation and be perceived as insightful, whereas a deaf person may be perceived as militant, divisive, or angry.   Trudy shared an example of this labeling in another StreetLeverage presentation (Suggs, 2012a). In that situation, the deaf people involved were simply sharing experiences, yet they were perceived as venting, divisive and angry. (It’s also important to note that anger can be a legitimate response to experiences of oppression and using such labels can be expressions of privilege.)

The dynamics of audism often means the risk can be even more subtle. To use a non-interpreting example, Oprah Winfrey was denied access to a store in Paris. She felt that she had been discriminated against because she was black. The store claimed that they were setting up for a private party and couldn’t let her in. Tim Wise suggests that the reason doesn’t matter. What is more significant is that “Oprah Winfrey, with all her money, all her power, and all her influence, still had to wonder, even if only for a moment, whether her race had trumped all that in the eyes of another person” (Wise, 2008, p. 72). Deaf people frequently have similar thoughts and experiences when encountering systems and institutions that favor the ability to hear, or hearing privilege. No matter how competent or powerful those individuals are, the risk of encountering doubt and insecurity is simply a part of living in a hearing-dominated society.

In this context, there may be situations where it seems too risky for a deaf person to be the lead, such as a deaf-hearing interpreting team. If a CDI brings forward a concern to an agency, the agency may view the deaf interpreter as the problem, choosing in the future to hire only hearing interpreters because they are perceived as safe. In addition, while being deaf in a hearing world can provide wisdom and insight, it also can be exhausting. At times, it makes sense for hearing interpreters to serve as allies in taking action. Yet, this is not a decision that hearing interpreters should make without deferring to the deaf interpreters.

Creating a Joint Plan of Action

If the team decides that the hearing interpreter is to take the lead, this should always be part of a joint plan. With the project manager, it made sense for Doug to raise the concern, but it didn’t mean that he acted on his own or that Trudy somehow ceded power to a privileged white, male, hearing interpreter. While in many respects, Trudy provided the leadership in the situation with insight into what was taking place and how to address the situation, Doug still could share his perspectives.

After an action is carried out, it is vital to evaluate the consequences. Throughout the project and even today, we continued to have conversations about the dynamics of interactions. Such a sharing of power is not something can simply be checked off a list. It is a continuing process.

Although such a process can consume energy and requires commitment, the upside is that sharing power does not have to be a zero-sum equation. Deaf people exercising their power do not diminish hearing interpreters’ power. Working together to create a plan of action that takes into account the value of deaf people’s experiences and the dynamics of a situation can be of benefit to all involved.

Beldon, in his interview, ended with an encouraging point in thinking about deaf-hearing interpreting teams:

Hearing interpreters have to help, serve as allies, and promote CDIs as team members. Share the message that it will ensure equivalent messages. It’s about deaf people’s language. Hearing interpreters can do their thing, and let the CDIs do theirs. It’s beautiful.

Deaf and hearing people working together in everyday situations to share leadership and power is just as beautiful, and well worth the energy to make it happen.

References

Beldon, J. (2014, Spring/Summer). Opening the door to CDI leadership. VIEWS. (no page number)

Hauser, P., O’Hearn, A., McKee, M., Steider, A., and Thew, D. (2010). Deaf epistemology: Deafhood and deafness. American Annals of the Deaf, 154(5), 486-492.

Suggs, T. (2012a, August 7). A deaf perspective: Cultural respect in sign language interpreting. Retrieved from http://www.streetleverage.com/2012/08/a-deaf-perspective- cultural-respect-in-sign-language-interpreting

Suggs, T. (2012b, December 11). Deaf disempowerment and today’s interpreter. Retrieved from http://www.streetleverage.com/2012/12/deaf-disempowerment-and-todays-interpreter

Wise, T. (2008). White like me: Reflections on race from a privileged son. Berkeley, CA: Soft Skull Press.

Copyrighted material, used by permission. This article can not be copied, reproduced, or redistributed without the written consent of the authors.

Beyond Face Value

I was a latecomer to Facebook. I created an account in 2007, but didn’t really use it until 2009. I had just given birth to my third child, who had a rough start and I was often up late worrying about him. To pass time in the wee hours, I spent hours poring through people’s Facebook pages and photographs.

Over time, Facebook became a key social media tool for my company. When one of my presentations went viral on the Internet, I started getting hundreds of friend requests from people I had never heard of. I decided to create a public page, so that people could follow my work if they wanted to—and I didn’t have to hurt anyone’s feelings by not accepting their friend requests.

I’m not going to repeat what many others have written about how Facebook took up their time, took them away from their children, and so on. Even so, the temptation to check the latest statuses was strong, and I started to see how Facebook really ate up time I could use for other things.

At that time, I lived in a small town. Everyone used Facebook to communicate, and this had its drawbacks: people would air conflicts online and use pictures or posts against each other both online and in person. Several times, I posted blanket statements that weren’t directed at any single person, and was quickly accused of talking about specific people in town. After repeated incidents of rumors running amok because of something I posted online, I didn’t feel good about Facebook anymore. I also didn’t like how the privacy settings weren’t really private. My husband, who has no interest in Facebook, suggested that I close my account. I agreed, and in early October, I started unfriending people in preparation for the account deactivation, reasoning that if I whittled down my friends list to zero, I could then be more selective once I reactivated my account someday.

The response was astounding. In late October, I had just presented a workshop in New York City, and was at LaGuardia Airport waiting to board my flight home. While waiting, I posted a message explaining that I was planning to deactivate my account, but people could find me on my other accounts. A few minutes later, I got a furious message from someone who lived in the same town, very upset I had unfriended him. His over-the-top email told of how I was unwelcome in some of the local Facebook groups, and that I wasn’t liked in town at all.

I burst into tears reading his message. People sitting next to me looked at me, startled at this sudden reaction. I was blown away by his email, and how it was so personal when my actions were not directed at anyone in particular—rather, it was an attempt to safeguard my family’s privacy. I posted another message, clarifying that I was shutting down my account and that it was nothing personal against anyone. After all, if people really wanted to stay updated on my doings, they could view my photos on Instagram, follow me on Twitter, “like” my public page, and visit my websites.

Since then, it’s been a marvelous experience, albeit a bit of a sociological experiment. I’ve received quite a few messages asking if I was okay and why I had shut down my Facebook account. The interesting thing was that these messages came about several months after deactivation. I also got a couple of messages from friends who were upset with me for allegedly blocking them. Once I explained that I had simply closed my account, they were virtually red-faced, apologizing for jumping to conclusions. It fascinated me that they were quick to assume instead of learning the facts first. I also found my family excluded from many local events, mainly because people forgot I wasn’t on Facebook anymore and didn’t have access to their invitations.

Still, something interesting started to happen. I started getting messages from friends who genuinely wanted to know how I was. They asked how my children were. They asked about my work. I was thrilled, because now I could have a meaningful email or even video conversation with them instead of quick soundbites here and there. I felt comforted that they took time out to check in on me, that I actually meant something to them.

Will I ever go back on Facebook? Sure, although technically, I never left—I still have my professional pages. When I do reactivate my account, I’m certainly going to be a lot more selective in who I allow in on my friends list. I don’t like being overwhelmed by messages coming at me from all directions, as if I were at a party saying hi in passing to 50 people and having in-depth conversations with none. I much prefer building, and nurturing, relationships with people, even if I don’t know them that well.

And that is the takeaway, for me, from this whole experience: that we all need to start reaching out to each other outside of social media. It’s so easy to feel like a social media minion, one of thousands and even millions of people on Facebook. Today, send an email or text to someone (or even call), and ask how that person is. It doesn’t have to be a long message; simply a, “Hey, how you doing?” will go a long way.

Copyrighted material, used by permission. This article can not be copied, reproduced, or redistributed without the written consent of the author.

Giving and Receiving Gratitude

My older two kids tried soccer for the first time this year. Coach Bob was an extremely patient guy who worked the large group of kids aged 4-7. My kids were new to the sport, so they required more coaching than others. We had a volunteer signer, and practices were held three times a week for a month.

After the very last practice, my children gave Coach Bob a handmade card. He was visibly touched, but what struck me was how they were the only ones to do this. I didn’t see any of the other families thank him, although they may have and I didn’t see it.  I found it hard to believe that this coach, who volunteered his time at the end of what probably were long days for him (he works as a school bus driver) and was so patient with very energetic children, received so little gratitude.

This made me think about how we have regulated gratitude. We have a designated day to show appreciation for pretty much every thing—like the recent Interpreter Appreciation Day (who thought that up, anyway?). There’s Bosses Day, Secretary Day, Teacher Appreciation Day, and Thank a Mailman Day. Let’s not forget Mother’s Day, Father’s Day, Grandparents’ Day, Sweetest Day, and so on.

As the mother of four children, I always feel weird on Mother’s Day. My children already show their appreciation of me in so many ways, as does my husband; I don’t need a day when they feel obligated to give me gifts. They give me love every day, and that’s all I need. But I’m not going to rant about consumerism and how these are profit-making events. The point here is that I prefer to express gratitude freely, and because it’s the right thing to do.

On a separate, but related, note: At a birthday party, I saw two mothers talk about how the birthday child had included thank-you notes in each attendee’s bag. The child had painstakingly handwritten each note. The mothers, who didn’t realize I saw them, laughed at the silliness of the notes.

One said, “I would never let my child do that. I don’t care about people sending me thank-you notes.” The other responded, laughing, “Me, either! I don’t have the time!”

I felt so bad for the birthday child, who had seen their entire conversation. I quickly went over to her to praise her hard work in writing these notes, and she beamed. Later, as I helped clean up, I found one of the thank-you notes, still in its envelope, discarded on the floor. It was addressed to one of the children whose mother had laughed it off. I  scooped it up and put it away  so the child wouldn’t see it. Rather than receiving gratitude from a child who wanted to express it, they chose to mock the gratitude.

Last week, I inquired after a colleague’s family; she had lost her mother the year before. It was a simple, brief conversation and I told her I had been thinking about her family. The next day, she gave me flowers, much to my surprise. I asked what they were for. “Because you asked about my mother,” she said.

Her message was clear—most people had forgotten about her mother’s anniversary. And that saddened me. I started to tell her it wasn’t necessary—but then stopped myself. She wanted to express gratitude. Building and maintaining relationships means taking care of each other, asking about each other, and most important of all, expressing gratitude freely by choice.  And we should receive gratitude with the same level of appreciation, instead of mocking it.

Small acts of gratitude mean more to me than appreciation days. Maybe others prefer to have a blanket appreciation event, especially those who don’t get recognized on an individual basis. That’s perfectly understandable, of course.

Today, maybe take time out to thank someone for something, even if it’s just for being a nice person. Express your gratitude in person. Write an email. Give credit on Facebook or Twitter for something someone did. It doesn’t have to be much, nor does it have to be public or forced. Simply make that person feel appreciated. Chances are the person will remember this effort far longer than any Hallmark-endorsed appreciation day.

Copyrighted material, used by permission. This article can not be copied, reproduced, or redistributed without the written consent of the author.

The fight of her life: Ronda Kopatich-Johnson

Ronda Kopatich-Johnson was my children’s teacher aide last year in preschool, and my children went ga-ga over her. My children came home with new words every single day. I could easily identify the words that came from Ronda, because of the signing style — and that always made me smile. They ask about Ronda every day, and talk about stories she told them such as her trip to Hawaii. She is gentle, loving, and firm but so incredibly sweet and giving. I could list a million positive adjectives about her, and I still wouldn’t get to the heart of who she is. So let me share a story.

Last year, my children’s school hosted a regional basketball tournament. The school gym is straight out of a movie–it is old, with a wooden, low ceiling that volleyball players use to their advantage during matches. The bleachers shake whenever people climb them, and reverberate with amazing energy when fans cheer. During the tournament, I realized my older daughter was nowhere to be seen, and I figured she was probably in the gym basement, playing with other children. I walked down to check on her, and saw a sight I’ll never forget.

About 15, maybe 20, children — both deaf and hearing — were seated in a circle. Ronda was explaining the rules for Duck, Duck, Goose to the captivated children. I watched from a distance as she taught them and then joined in on the fun.

Nobody asked her to do this, but Ronda knew the children were in need of activities after being cooped up in the gym all day long. Never mind that she already worked with preschoolers all week, and this was her time off.  After a while, I asked if she was all right, if she needed me to get the other parents so that she could watch the game; she was, and is, a renowned basketball player, and I knew how important basketball is to her. She shook her head and said she was just fine, that she was happy to help parents, including me, get a little respite.

I couldn’t stop thinking about this amazing deed on her part, because upstairs, there were hundreds of parents enjoying the games, clueless to the fact that one woman had chosen to go downstairs and entertain children who weren’t hers.

That, my friends, is what a true role model is.

Ronda is now fighting the harshest battle of her life: cancer. Since she is not covered by her wife’s health insurance, they have to pay for her medical expenses out of pocket. She was in the hospital for more than a month, days away from death. She is now home, and slowly but surely fighting her way back to “normal” (whatever that is). Her family is amazingly devoted to her recovery, especially her wife, Kelly.

Maybe you could spare a dollar or two, and help. Go to www.giveforward.com/rondakopatichjohnsonfund and read more there.

My children are really looking forward to having Ronda back at school. I am, too.

Update: The donation website is now inactive. Ronda passed away on July 18, 2013, and fought to the very end.

Adopt a Deaf Dog Today!

January 2, 2009: This organization is apparently inactive. Donations to the organization have not been returned nor acknowledged; complaints have been filed with the state of Florida and the Better Business Bureau. Even so, do consider adopting a deaf dog today.

This article originally appeared at i711.com.

I avoid www.deafdogs.org like the plague.

Otherwise, I end up having a broken heart because I can’t adopt all of the dogs on this site.

Page after page shows pictures of gorgeous, photogenic, lovable dogs – all deaf and needing homes. Every year, thousands of dogs are killed because they’re deaf, and this pulls at my heart. Maybe it’s because I’m Deaf, or maybe it’s because I have a weak spot for all furry creatures, or maybe it’s just the basic idea that someone (or an animal) would be discarded simply because of the inability to hear.

The website is run by Deaf Dog Education Action Fund (DDEAF), a nonprofit, educational organization based in California, incorporated in 1997. DDEAF is “dedicated to provide support and information to deaf dog owners around the world who, thanks in part to the Internet, were discovering that they were not alone,” the DDEAF website says.

As someone who shares a house with a deaf dog, I first learned about deaf dogs years ago when I was surfing the Internet. When I saw the DDEAF website, I immediately wanted to adopt a deaf dog, but I already had a 75-pound dog and was living in an apartment that only allowed dogs up to 40 pounds. I promised myself that when I moved to a house, I’d get another dog, a deaf dog. Meanwhile, I checked the site every week, bemoaning all the adorable dogs staring at me from my computer screen.

Then fate smiled upon me. I got an e-mail from a woman in Atlanta who had seen my name on some deaf dog list. She asked if I’d be interested in adopting seven-month-old Malcolm, who was hours away from being euthanized because he was deaf. I immediately said yes, especially after seeing pictures. My mother agreed to take Malcolm in until I could take him; Malcolm was brought to Chicago via a dog run – when people drive dogs from one point to another, and then transfer the dogs to another person who then drives the dogs another distance, until each of the dog is transported to the final destination. It’s a remarkable service. Malcolm came into my life in August 2002. As I write this more than four years later, Malcolm is happily chewing on rawhide next to his best friend, Isre.

Tweets